16. Abbreviations

Abbreviation Meaning
C4C consent for contact
CPFT Cambridgeshire & Peterborough NHS Foundation Trust
CRATE Clinical Records Anonymisation and Text Extraction (software) [4]
CRIS Clinical Records Interactive Search [2] [3]
CSV comma-separated value (file)
DD data dictionary
EMR electronic medical record (system)
GATE General Architecture for Text Engineering (software)
IAPT UK Improving Access to Psychological Therapies service
ID identifier
KCL King’s College London
MPID master patient identifier
MRID master research identifier
NHS UK National Health Service
NLP natural language processing
PID patient identifier
RCEP RiO CRIS Extraction Program (by Servelec)
RDBM Research database manager
RID research identifier
RiO An EMR product from Servelec
SLAM South London & Maudsley NHS Foundation Trust
SQL Structured Query Language [1]
TRID transient research identifier
TSV tab-separated value (file)
UK United Kingdom

17. Glossary

  • Master patient ID (MPID). A number that uniquely identifies a patient across many databases. In the UK, the NHS number is the usual MPID.
  • Master research ID (MRID). A research identifier that is unique to a de-identified patient’s record across many linked research databases. A securely hashed version of the MPID.
  • Patient ID (PID). A number that uniquely identifies a patient within a given database. For example, in a Servelec RiO database, the RiO number is the PID.
  • Research database administrator (RDBM). A person authorized to run a research database. They may also function as a member of the clinical administrative team, to whom clinicians may delegate work.
  • Research ID (RID). A research identifier that is unique to a de-identified patient’s record in a research database. A securely hashed version of the PID.
  • Transient research ID (TRID). An integer that is unique to a de-identified patient within a given database, but which is susceptible to being destroyed and replaced by a different number if the database is de-identified again. It’s faster than the RID, because it’s an integer, and it can be used reliably to link tables within a query, but it can’t be stored and relied on again later, unlike the RID or MRID.

Footnotes

[1]Codd EF (1970). “A Relational Model of Data for Large Shared Data Banks.” Commun. ACM 13: 377–387. https://doi.org/10.1145/362384.362685.
[2]Stewart R et al. (2009). “The South London and Maudsley NHS Foundation Trust Biomedical Research Centre (SLAM BRC) case register: development and descriptive data.” BMC Psychiatry 9: 51. https://www.ncbi.nlm.nih.gov/pubmed/19674459; https://doi.org/10.1186/1471-244X-9-51.
[3]Fernandes A et al. (2013). “Development and evaluation of a de-identification procedure for a case register sourced from mental health electronic records.” BMC Medical Informatics and Decision Making 13: 71. https://www.ncbi.nlm.nih.gov/pubmed/23842533; https://doi.org/10.1186/1472-6947-13-71.
[4]Cardinal RN (2017). “Clinical records anonymisation and text extraction (CRATE): an open-source software system.” BMC Medical Informatics and Decision Making 17: 50. https://www.ncbi.nlm.nih.gov/pubmed/28441940; https://doi.org/10.1186/s12911-017-0437-1.