19. Abbreviations
Abbreviation |
Meaning |
---|---|
C4C |
consent for contact |
CPFT |
Cambridgeshire & Peterborough NHS Foundation Trust |
CRATE |
Clinical Records Anonymisation and Text Extraction (software) 4 |
CRIS |
|
CSV |
comma-separated value (file) |
DD |
data dictionary |
EMR |
electronic medical record (system) |
GATE |
General Architecture for Text Engineering (software) |
IAPT |
UK Improving Access to Psychological Therapies service |
ID |
identifier |
KCL |
King’s College London |
MPID |
master patient identifier |
MRID |
master research identifier |
NHS |
UK National Health Service |
NLP |
natural language processing |
PID |
patient identifier |
RCEP |
RiO CRIS Extraction Program (by Servelec) |
RDBM |
Research database manager |
RID |
research identifier |
RiO |
An EMR product from Servelec |
SLAM |
South London & Maudsley NHS Foundation Trust |
SQL |
Structured Query Language 1 |
TRID |
transient research identifier |
TSV |
tab-separated value (file) |
UK |
United Kingdom |
20. Glossary
Master patient ID (MPID). A number that uniquely identifies a patient across many databases. In the UK, the NHS number is the usual MPID.
Master research ID (MRID). A research identifier that is unique to a de-identified patient’s record across many linked research databases. A securely hashed version of the MPID.
Patient ID (PID). A number that uniquely identifies a patient within a given database. For example, in a Servelec RiO database, the RiO number is the PID.
Research database administrator (RDBM). A person authorized to run a research database. They may also function as a member of the clinical administrative team, to whom clinicians may delegate work.
Research ID (RID). A research identifier that is unique to a de-identified patient’s record in a research database. A securely hashed version of the PID.
Transient research ID (TRID). An integer that is unique to a de-identified patient within a given database, but which is susceptible to being destroyed and replaced by a different number if the database is de-identified again. It’s faster than the RID, because it’s an integer, and it can be used reliably to link tables within a query, but it can’t be stored and relied on again later, unlike the RID or MRID.
Footnotes
- 1
Codd EF (1970). “A Relational Model of Data for Large Shared Data Banks.” Commun. ACM 13: 377–387. https://doi.org/10.1145/362384.362685.
- 2
Stewart R et al. (2009). “The South London and Maudsley NHS Foundation Trust Biomedical Research Centre (SLAM BRC) case register: development and descriptive data.” BMC Psychiatry 9: 51. https://www.ncbi.nlm.nih.gov/pubmed/19674459; https://doi.org/10.1186/1471-244X-9-51.
- 3
Fernandes A et al. (2013). “Development and evaluation of a de-identification procedure for a case register sourced from mental health electronic records.” BMC Medical Informatics and Decision Making 13: 71. https://www.ncbi.nlm.nih.gov/pubmed/23842533; https://doi.org/10.1186/1472-6947-13-71.
- 4
Cardinal RN (2017). “Clinical records anonymisation and text extraction (CRATE): an open-source software system.” BMC Medical Informatics and Decision Making 17: 50. https://www.ncbi.nlm.nih.gov/pubmed/28441940; https://doi.org/10.1186/s12911-017-0437-1.