|C4C||consent for contact|
|CPFT||Cambridgeshire & Peterborough NHS Foundation Trust|
|CRATE||Clinical Records Anonymisation and Text Extraction (software) |
|CRIS||Clinical Records Interactive Search  |
|CSV||comma-separated value (file)|
|EMR||electronic medical record (system)|
|GATE||General Architecture for Text Engineering (software)|
|IAPT||UK Improving Access to Psychological Therapies service|
|KCL||King’s College London|
|MPID||master patient identifier|
|MRID||master research identifier|
|NHS||UK National Health Service|
|NLP||natural language processing|
|RCEP||RiO CRIS Extraction Program (by Servelec)|
|RDBM||Research database manager|
|RiO||An EMR product from Servelec|
|SLAM||South London & Maudsley NHS Foundation Trust|
|SQL||Structured Query Language |
|TRID||transient research identifier|
|TSV||tab-separated value (file)|
- Master patient ID (MPID). A number that uniquely identifies a patient across many databases. In the UK, the NHS number is the usual MPID.
- Master research ID (MRID). A research identifier that is unique to a de-identified patient’s record across many linked research databases. A securely hashed version of the MPID.
- Patient ID (PID). A number that uniquely identifies a patient within a given database. For example, in a Servelec RiO database, the RiO number is the PID.
- Research database administrator (RDBM). A person authorized to run a research database. They may also function as a member of the clinical administrative team, to whom clinicians may delegate work.
- Research ID (RID). A research identifier that is unique to a de-identified patient’s record in a research database. A securely hashed version of the PID.
- Transient research ID (TRID). An integer that is unique to a de-identified patient within a given database, but which is susceptible to being destroyed and replaced by a different number if the database is de-identified again. It’s faster than the RID, because it’s an integer, and it can be used reliably to link tables within a query, but it can’t be stored and relied on again later, unlike the RID or MRID.
|||Codd EF (1970). “A Relational Model of Data for Large Shared Data Banks.” Commun. ACM 13: 377–387. https://doi.org/10.1145/362384.362685.|
|||Stewart R et al. (2009). “The South London and Maudsley NHS Foundation Trust Biomedical Research Centre (SLAM BRC) case register: development and descriptive data.” BMC Psychiatry 9: 51. https://www.ncbi.nlm.nih.gov/pubmed/19674459; https://doi.org/10.1186/1471-244X-9-51.|
|||Fernandes A et al. (2013). “Development and evaluation of a de-identification procedure for a case register sourced from mental health electronic records.” BMC Medical Informatics and Decision Making 13: 71. https://www.ncbi.nlm.nih.gov/pubmed/23842533; https://doi.org/10.1186/1472-6947-13-71.|
|||Cardinal RN (2017). “Clinical records anonymisation and text extraction (CRATE): an open-source software system.” BMC Medical Informatics and Decision Making 17: 50. https://www.ncbi.nlm.nih.gov/pubmed/28441940; https://doi.org/10.1186/s12911-017-0437-1.|