.. crate_anon/docs/source/website_using/contact_patients.rst .. Copyright (C) 2015, University of Cambridge, Department of Psychiatry. Created by Rudolf Cardinal (rnc1001@cam.ac.uk). . This file is part of CRATE. . CRATE is free software: you can redistribute it and/or modify it under the terms of the GNU General Public License as published by the Free Software Foundation, either version 3 of the License, or (at your option) any later version. . CRATE is distributed in the hope that it will be useful, but WITHOUT ANY WARRANTY; without even the implied warranty of MERCHANTABILITY or FITNESS FOR A PARTICULAR PURPOSE. See the GNU General Public License for more details. . You should have received a copy of the GNU General Public License along with CRATE. If not, see . .. _Django: https://www.djangoproject.com/ Contacting patients about research studies ------------------------------------------ This part of CRATE implements the consent-for-contact traffic light system described in the :ref:`overview `. The principle is that researchers are only given information that will identify a patient with that patient's explicit consent. .. _c4c_view_manage_studies: View/manage your studies ~~~~~~~~~~~~~~~~~~~~~~~~ This section is a Django_ admin site that allows researchers to enter details of their studies and associated information. Contact requests ^^^^^^^^^^^^^^^^ Here, you can view and filter your contact requests and their progress (showing the aspects that you're allowed to see) [#researchercrclass]_. You can also :ref:`submit a contact request `. Clinicians will be able to respond in one of the following ways, with the coresponding code letter: R: Clinician asks RDBM to pass request to patient A: Clinician will pass the request to the patient B: Clinician vetoes on clinical grounds C: Patient is definitely ineligible D: Patient is dead/discharged or details are defunct As of CRATE version 0.18.94, option C will always be available to the clinician. Emails ^^^^^^ Here, you can view e-mails sent by the system to which you have access [#researcheremailclass]_. (You won't be able to see others, like e-mails sent to clinicians about patients you might wish to identify.) Leaflets ^^^^^^^^ Here, you can view leaflets associated with the system as a whole [#researcherleafletclass]_. Letters ^^^^^^^ Here, you can view letters that the system has generated electronically and send to you or your team, if you have permission [#researcherletterclass]_. Studies ^^^^^^^ Here, you can view studies with which you are associated [#researcherstudyclass]_. The RDBM can edit these for you. .. _c4c_submit_contact_request: Submit a contact request ~~~~~~~~~~~~~~~~~~~~~~~~ Suppose you're running an approved study and have found patients in the de-identified database. You'd like to meet them. You know their :ref:`research IDs `, but you don't know who they are. Do they want you to contact them to offer them potential participation? Researchers can submit contact requests based on :ref:`RID ` or :ref:`MRID `. Database administrators (:ref:`RDBMs `) may also look up using identifiable information such as the :ref:`MPID `. Clinicians have an additional :ref:`privileged contact request ` option. =============================================================================== .. rubric:: Footnotes .. [#researchercrclass] In the code, this is :class:`crate_anon.crateweb.core.admin.EmailResAdmin`. .. [#researcheremailclass] In the code, this is :class:`crate_anon.crateweb.core.admin.ContactRequestResAdmin`. .. [#researcherleafletclass] In the code, this is :class:`crate_anon.crateweb.core.admin.LeafletResAdmin`. .. [#researcherstudyclass] In the code, this is :class:`crate_anon.crateweb.core.admin.StudyResAdmin`. .. [#researcherletterclass] In the code, this is :class:`crate_anon.crateweb.core.admin.LetterResAdmin`.