.. crate_anon/docs/source/website_using/contact_patients.rst
.. Copyright (C) 2015, University of Cambridge, Department of Psychiatry.
Created by Rudolf Cardinal (rnc1001@cam.ac.uk).
.
This file is part of CRATE.
.
CRATE is free software: you can redistribute it and/or modify
it under the terms of the GNU General Public License as published by
the Free Software Foundation, either version 3 of the License, or
(at your option) any later version.
.
CRATE is distributed in the hope that it will be useful,
but WITHOUT ANY WARRANTY; without even the implied warranty of
MERCHANTABILITY or FITNESS FOR A PARTICULAR PURPOSE. See the
GNU General Public License for more details.
.
You should have received a copy of the GNU General Public License
along with CRATE. If not, see .
.. _Django: https://www.djangoproject.com/
Contacting patients about research studies
------------------------------------------
This part of CRATE implements the consent-for-contact traffic light system
described in the :ref:`overview `.
The principle is that researchers are only given information that will identify
a patient with that patient's explicit consent.
.. _c4c_view_manage_studies:
View/manage your studies
~~~~~~~~~~~~~~~~~~~~~~~~
This section is a Django_ admin site that allows researchers to enter details
of their studies and associated information.
Contact requests
^^^^^^^^^^^^^^^^
Here, you can view and filter your contact requests and their progress (showing
the aspects that you're allowed to see) [#researchercrclass]_.
You can also :ref:`submit a contact request `.
Clinicians will be able to respond in one of the following ways, with the
coresponding code letter:
R: Clinician asks RDBM to pass request to patient
A: Clinician will pass the request to the patient
B: Clinician vetoes on clinical grounds
C: Patient is definitely ineligible
D: Patient is dead/discharged or details are defunct
As of CRATE version 0.18.94, option C will always be available to the
clinician.
Emails
^^^^^^
Here, you can view e-mails sent by the system to which you have access
[#researcheremailclass]_. (You won't be able to see others, like e-mails sent
to clinicians about patients you might wish to identify.)
Leaflets
^^^^^^^^
Here, you can view leaflets associated with the system as a whole
[#researcherleafletclass]_.
Letters
^^^^^^^
Here, you can view letters that the system has generated electronically and
send to you or your team, if you have permission [#researcherletterclass]_.
Studies
^^^^^^^
Here, you can view studies with which you are associated
[#researcherstudyclass]_. The RDBM can edit these for you.
.. _c4c_submit_contact_request:
Submit a contact request
~~~~~~~~~~~~~~~~~~~~~~~~
Suppose you're running an approved study and have found patients in the
de-identified database. You'd like to meet them. You know their :ref:`research
IDs `, but you don't know who they are. Do they want you to contact them
to offer them potential participation?
Researchers can submit contact requests based on :ref:`RID ` or :ref:`MRID
`.
Database administrators (:ref:`RDBMs `) may also look up using
identifiable information such as the :ref:`MPID `.
Clinicians have an additional :ref:`privileged contact request
` option.
===============================================================================
.. rubric:: Footnotes
.. [#researchercrclass]
In the code, this is :class:`crate_anon.crateweb.core.admin.EmailResAdmin`.
.. [#researcheremailclass]
In the code, this is
:class:`crate_anon.crateweb.core.admin.ContactRequestResAdmin`.
.. [#researcherleafletclass]
In the code, this is
:class:`crate_anon.crateweb.core.admin.LeafletResAdmin`.
.. [#researcherstudyclass]
In the code, this is :class:`crate_anon.crateweb.core.admin.StudyResAdmin`.
.. [#researcherletterclass]
In the code, this is
:class:`crate_anon.crateweb.core.admin.LetterResAdmin`.